Health Canada has approved Spinraza for Spinal Muscular Atrophy (SMA) patients so what is stopping the Ontario Government from allowing a Children’s Hospital to administer this to young patients. Especially when it has proven effective in the USA for patients with SMA 1, 2 & 3. Money should not prevent a child have a chance at a normal life.
Irreversible tissue damage will happen if 3.5 year old Sofia Gall does not get treated. Why do her parents need to raise money through donations to travel to a hospital in the States just so the Ontario Government can save a penny to waste on their follies?
Help Sofia and her mom Julia Antipa by making her plea go viral on Facebook.
Help the Ontario Disability Coalition make a change and sign our Petition.